The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care. But we could not do it without you.
Working alongside the CF community, the Foundation drives extraordinary results.
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Your support accelerates progress…
- Pioneered the use of venture philanthropy, a research funding model that has spurred the discovery of multiple breakthrough therapies that target the underlying cause of CF. The venture philanthropy model is admired and emulated by nonprofits everywhere for its astonishing capacity to drive results. Today, we are investing more than $250 million a year in CF research and care. This includes advancing our Path to a Cure, an ambitious research initiative that challenges leading researchers and drug developers to accelerate the pace of progress in CF.
- Fostered the development of more than a dozen CF treatments and added decades of life for those with CF. Currently, there are 40+ therapies in the drug development pipeline with potential to significantly improve the lives of those with CF.
- Supported pioneering research that led to the discovery of the gene that causes cystic fibrosis. Fast forward 30+ years, and in 2020 the Foundation held 101 meetings and engaged with 48+ biotech companies in the U.S. and Europe to progress gene-based therapies for all people with CF.
Provided more than 4,000 grants for CF research and care over the past six years; currently working with hundreds of scientists working at 300+ labs across the country.
Launched the Therapeutics Development Network (TDN), a model for research networks globally. Today the TDN conducts 60+ clinical trials annually at 91 research centers, comprising the largest CF clinical trials network anywhere in the world. This network is the hub for advances in key areas of focus such as research on infections, advanced lung disease, and nonsense and rare mutations.
Your support strengthens our community…
- Champion policies to protect the CF community. Advocacy for high-quality specialized care for people with CF and their families, has resulted in historic wins – including protections for pre-existing conditions and mandatory newborn screening for CF in all 50 states.
Supports the CF community at every step of their journey through Compass, a free service that helps CF families navigate insurance, financial, legal, and other issues. Each year, Compass fields approximately 11,000 calls from CF community members.
Partnered with the CF community to continuously learn from and engage with those living with this disease, resulting in numerous programs that support people with CF no matter where they are on their journey. Today, thanks to the community, we have increased our community engagement efforts with approximately 1,000+ annual events nationwide and new community-driven programs that enhance quality of life – such as BreatheCon, CF Peer Connect, ROSE UP, and Community Voice.
Your support advances innovative care…
More than doubled the life expectancy of those living with CF over the past three decades by championing high quality, specialized care and therapeutic progress.
Established a globally recognized care model that includes 120+ accredited CF care centers to deliver high quality, specialized care. Since 2014 the Foundation has increased funding for CF care by 120 percent. Today, we continue to evolve our care model to meet the emerging needs of people with CF as they live longer.
“I believe that we can create an impact while we are here and even after we are gone, because tomorrow is never guaranteed for anyone.”
For a copy of our Strategic Plan please click here.
For information about our financials or a copy of our most recent annual report, please click here.
There are many ways to support and connect with people with CF and their families. You can advocate, connect, fundraise, volunteer, attend an event and give to the cause!